A baby born in Washington with a rare skin condition is surviving against ... week and rough exfoliation to stave off infections. The disease occurs in just one in every 500,000 births, and ...

"Why did my classmate say that my skin is yucky?" asked five-year-old Sophie Goh. It may seem like an innocent question, but ...

The baby’s face was covered in a black hood ... Her story of bringing up children who suffer from ichthyosis, a rare skin disease, has redefined motherhood for her. She describes it as a journey ...

A Dublin girl born with the most severe form of butterfly skin is excited as she prepares ... to secondary school later this ...

A California family is holding on to hope that their baby son can beat an extremely rare disease threatening to claim his life. In March, 7-month-old JT Borofka was diagnosed with Triosephosphate ...

Babies born with ... a hereditary skin disease clinic to ensure the availability of long-term treatment for patients, including "butterfly children" and other rare disease sufferers.

A newborn has been diagnosed with a genetic disease so rare that she's only the sixth ... so beautiful and being so blessed that we have a baby girl in our arms who is so healthy right now ...

That's why scientists celebrated the development of an incredible new gel that has proven to help close the wounds associated with this rare skin disease. Although treatments already existed ...

Sanofi and Regeneron's Dupixent is on track to become the first targeted drug in the EU to be approved for prurigo nodularis (PN), a rare and highly debilitating skin disease. The EMA's human ...

Preparations are under way for Casey’s transition into secondary school in August (Rachel Connors/PA) A Dublin girl born with the most severe form of butterfly skin is excited as ... Ahead of Rare ...