Volunteers shared personal stories about life with CF while urging members of Congress to protect patients and progress.
A biorepository is a place, similar to a library or bank, where biological samples are stored for use in research. Since 2006, the Cystic Fibrosis Foundation has collected and stored samples from a ...
My son wasn’t diagnosed with CF until he was an adult and needed a lung transplant to save his life. He struggled to access the care he needed and ultimately passed away. I want his story to spark ...
When I realized I hadn’t fully processed what it was like to grow up with cystic fibrosis, I turned my experiences and feelings into a story to help me better understand them. What started as a ...
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