Matter of Time,” a documentary featuring Pearl Jam frontman Eddie Vedder that is set to debut this summer at the Tribeca Film Festival, is being billed as much more than a concert film – it’s a ...

Clare Baumhauer was misdiagnosed for decades before being eventually told she had lichen sclerosus and vulval cancer.

If the skin gradually hardens, the fingertips turn white or blue, and unprovoked dyspnea or indigestion is repeated during ...

Influencer Hannah Campbell shared the sad news on TikTok that her 10-month-old daughter, Elliana Rose, who had junctional epidermolysis bullosa, died on Monday, April 7.

View over 500 magazine covers the Bulletin has published since 1945. In these issues, you'll see contributions from luminaries such as Albert Einstein, John F. Kennedy, and Mikhail Gorbachev. When you ...

It is this gap in people's awareness about those with rare skin conditions that Elaine hopes to bridge. "The first thing people assume is that you're contagious [and think] 'I don't want to ...

After regulators approved Soleno Therapeutics Inc.'s nearly half-million-a-year drug to treat an insatiable, dangerous hunger in people with a rare genetic disease, the Redwood City company's ...

Nitisinone already has regulatory approval for treating certain rare, inherited diseases. It works by blocking the production of a specific protein, which leads to reduced toxic disease byproducts in ...

SPOKANE, Wash. – Ryan Becker, a Spokane resident, is battling an extremely rare skin condition known as pyoderma gangrenosum. After visits to the Mayo Clinic and Johns Hopkins, Becker has been ...

The Food and Drug Administration on Wednesday approved the first medicine to treat people with Prader-Willi syndrome, a rare genetic disease that causes an insatiable desire to eat. The drug ...

FSHD is a rare neuromuscular disorder estimated to affect about 870,000 people worldwide. The disease is characterized by progressive muscle weakness that begins in the face, back and upper arms and ...

Trump has said his minerals deal with Ukraine could net the US $500 billion from rare earths alone. The deal appears to be moving ahead, but readily exploitable deposits of rare earths may be a ...